Tag Archives: bone marrow transplant

Living with Leukemia

It’s been many weeks since we provided an update on Deb’s health and her battle with acute myeloid leukemia, one of the most challenging and low survival rate cancers.  For the past weeks, we have been waiting for results from … Continue reading

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Donor Infusion

Andy and I and Deb’s friend Christopher went with Deb today to Stanford, where she received her donor lymphocyte infusion (DLI) as an outpatient.  The lymphocytes, a type of white blood cell, were collected from Deb’s original donor, Mr. International, … Continue reading

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Riding the Waves

Deb has been out of the hospital for a month now, and I know an update is long overdue.  Deb was extremely weak when she came home, and is still struggling to do basic things like walk up stairs alone.  … Continue reading

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Looking for the Silver Linings

Thanks to everyone who has been sending me positive energy toward healing my asthma and leukemia. Many of you know that I nearly died on the CT SCAN table at the end of January. I was brought back to life … Continue reading

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The Next Steps

As you know, Deb has been in Kaiser Permanente Terra Linda hospital recovering from respiratory problems – wheezing, difficulty breathing, and coughing.  She has had three chest x-rays and two CT scans.  The most recent CT scan showed a sinus … Continue reading

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A Beautiful Wedding and more … December 28, 2014

People have been asking me (Mary Lou) why there haven’t been any recent updates, and the answer is simply that we have been very, very busy.  The happy news I have to share is that Deb and her sweetheart Andy … Continue reading

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Rivers of Hope

I am posting this lighthearted, healthy photo of me, as I fully aim to be healthy and cured of cancer forever! I encourage you to think of me this way – thank you. Unfortunately, my road to the cure for … Continue reading

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A Prayer for Healing – Biopsy Results

Dear Friends, As you know we’ve been waiting for news on my bone marrow biopsy which was done twice because of inconclusive test results. Unfortunately, on Tuesday the Stanford doctor told me he is 99.5% sure that my condition is … Continue reading

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More Tests Needed

My bone marrow biopsy information came back today, and unfortunately the results were “inconclusive,” so the sample now is going to Stanford for further study, and I need to get additional tests and another biopsy at Stanford next week.  While … Continue reading

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A Setback

Hi everyone, this is Mary Lou, Deb’s Mom.  Deb had been recovering well from her stem cell transplant (March 19), with only minor issues over the past few months.  By September she felt like she was getting more energy back.  … Continue reading

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What a Difference a Year Makes!

It was one year ago today, on October 17, 2013 when I got a call that changed my life forever. Dr. Lori Kim, an amazing Oncologist from Kaiser Permanente called me at 11:30 AM to let me know that the … Continue reading

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Reflections as I Step Down as Director of the Safe Routes to School National Partnership

Throughout my entire life I’ve always wanted to make a difference in the world. I found my niche in the late 1990s with Safe Routes to School and never looked back. Good ideas have a way of catching on, which … Continue reading

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Adjusting and Watching the Blood Counts

Some people watch the stock market, examining each up and down and analyzing what it means.  I watch my blood counts… During my last visit to the Stanford Clinic, Dr. Lowsky said that I don’t need to have any more … Continue reading

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Reflections on Our Stay in Stanford

Hi everyone, this is Mary Lou, Deb’s Mom.  I haven’t written in a while since Deb has been feeling better and able to write her own blogs.  The updates that Deb writes appear under the “Deb’s Blog” tab, so be … Continue reading

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Mask Free Dances and More!

On July 17, I had an awesome visit with my Stanford bone marrow transplant doctor, Dr. Robert Lowsky.  The date of the appointment was exactly nine months since I was diagnosed with leukemia; now the cancer is gone and the … Continue reading

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Riding Out the Storm

I’m honored that the Marin County newspaper the Pacific Sun published a cover story this week on my recovery from leukemia and my environmental and health career since the 90’s — improving walking and bicycling in Marin and nationwide. You … Continue reading

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Life After Day +100

June 27, 2014 was the magic mark of 100 days after my bone marrow transplant! This means that I made it through the most difficult phase of healing from leukemia, but my doctor keeps reminding me to take it easy … Continue reading

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Three Thumbs Up!

I heard the absolutely best news ever on Wednesday, June 18 – which was exactly eight months after I was admitted to Kaiser Permanente to start chemo for acute myeloid leukemia. My Stanford doctor, Robert Lowsky, MD, met with my … Continue reading

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Milestone Day — Bone marrow biopsy and catheter removal!

I must say that my daughter Deb is a very brave gal.  I was queasy just watching her procedures yesterday, but she handled everything amazingly well.  Even with morphine, ativan and lidocaine, there was still pain.  Luckily Deb has a … Continue reading

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Going Home Soon!

Good news! The plan is that I’m moving home soon! I left Marin on March 9 to come to Stanford Hospital to have my bone marrow transplant (BMT) and to be cured of AML forever. I was discharged on April … Continue reading

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