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Deb Hubsmith
I'm blessed with a beautiful life, wonderful family and friends, and had an exciting career. But, in October 2013, I was suddenly stricken and diagnosed with acute myeloid leukemia (AML) following a two week illness not unlike a flu. My life changed immediately.I was treated by Kaiser Permanente Hospital in San Rafael, California for months where I received multiple rounds of chemotherapy. This treatment did not knock out my AML and my only hope for a cure was to go to Stanford Hospital for a bone marrow transplant (BMT) in March of 2014.
The BMT was very intense and painful but I made it out of Stanford alive. I was doing great and growing stronger until November of 2014 when my blood counts again dropped. I am now being treated for a rare bone marrow condition called serous atrophy, which keeps stem cells from functioning/multiplying properly in my bone marrow. I lost a significant amount of weight and have intense fatigue, must avoid public places (due to infection risk), and as a result spend much of my time lying in bed.
I deeply want to live but desire to have a quality of life that includes dance, community, working for environmental/social causes, being able to enjoy time in nature and spend quality time with my beloved newlywed husband Andy Peri.
I am surviving on blood transfusions and am in a place of yearning to survive. I am also open to letting go of this life with grace should my options fade away. What carries me more than anything else is the dramatic, soul-enriching love of family and friends and my own love and acceptance of change and all that has come to pass.
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Category Archives: Deb’s Blog
Deb’s Gymnastics video … 1986
This is Andy, Deb’s husband. I’m spending lots of time with my beloved Deb as she continues on her journey in this life. Some days are more intense than others with Deb experiencing lots of pain much of the time. … Continue reading
Acceptance
I am still open to a miracle cure, but over the past few weeks I have finally come to acceptance that due to my severe health condition starting with leukemia 21 months ago, I may not have much time left … Continue reading
Looking for the Silver Linings
Thanks to everyone who has been sending me positive energy toward healing my asthma and leukemia. Many of you know that I nearly died on the CT SCAN table at the end of January. I was brought back to life … Continue reading
Rivers of Hope
I am posting this lighthearted, healthy photo of me, as I fully aim to be healthy and cured of cancer forever! I encourage you to think of me this way – thank you. Unfortunately, my road to the cure for … Continue reading
A Prayer for Healing – Biopsy Results
Dear Friends, As you know we’ve been waiting for news on my bone marrow biopsy which was done twice because of inconclusive test results. Unfortunately, on Tuesday the Stanford doctor told me he is 99.5% sure that my condition is … Continue reading
More Tests Needed
My bone marrow biopsy information came back today, and unfortunately the results were “inconclusive,” so the sample now is going to Stanford for further study, and I need to get additional tests and another biopsy at Stanford next week. While … Continue reading
Live video recording of my song “Deeper Inside”
Here’s a “home grown” live video recording of my song “Deeper Inside,” which is about my “come back” from being diagnosed with leukemia last Fall. Special thanks to Anny Owen Densmore who masterfully put the lyrics to music and encouraged … Continue reading
What a Difference a Year Makes!
It was one year ago today, on October 17, 2013 when I got a call that changed my life forever. Dr. Lori Kim, an amazing Oncologist from Kaiser Permanente called me at 11:30 AM to let me know that the … Continue reading
Reflections as I Step Down as Director of the Safe Routes to School National Partnership
Throughout my entire life I’ve always wanted to make a difference in the world. I found my niche in the late 1990s with Safe Routes to School and never looked back. Good ideas have a way of catching on, which … Continue reading
Adjusting and Watching the Blood Counts
Some people watch the stock market, examining each up and down and analyzing what it means. I watch my blood counts… During my last visit to the Stanford Clinic, Dr. Lowsky said that I don’t need to have any more … Continue reading
Mask Free Dances and More!
On July 17, I had an awesome visit with my Stanford bone marrow transplant doctor, Dr. Robert Lowsky. The date of the appointment was exactly nine months since I was diagnosed with leukemia; now the cancer is gone and the … Continue reading
Riding Out the Storm
I’m honored that the Marin County newspaper the Pacific Sun published a cover story this week on my recovery from leukemia and my environmental and health career since the 90’s — improving walking and bicycling in Marin and nationwide. You … Continue reading
Life After Day +100
June 27, 2014 was the magic mark of 100 days after my bone marrow transplant! This means that I made it through the most difficult phase of healing from leukemia, but my doctor keeps reminding me to take it easy … Continue reading
Three Thumbs Up!
I heard the absolutely best news ever on Wednesday, June 18 – which was exactly eight months after I was admitted to Kaiser Permanente to start chemo for acute myeloid leukemia. My Stanford doctor, Robert Lowsky, MD, met with my … Continue reading
Going Home Soon!
Good news! The plan is that I’m moving home soon! I left Marin on March 9 to come to Stanford Hospital to have my bone marrow transplant (BMT) and to be cured of AML forever. I was discharged on April … Continue reading
BENEFIT TO HELP DEB HUBSMITH HEAL FROM LEUKEMIA FRIDAY, MAY 16, 8 pm – 2 am 15 Bands, 3 Venues, one price of $20: DOWNTOWN FAIRFAX
Dear Friends, Being diagnosed with acute myeloid leukemia last fall was a huge shock. I never thought I’d get cancer. But there I was, on October 17, facing down a serious blood cancer diagnosis. Soon, the reality set in that … Continue reading
Happy Mother’s Day, And A Big Thanks to My Amazing Mom!
Sunday, May 11, 2014 is Mother’s Day and people all over the world will be honoring their Moms — the amazing beings who brought them into this world, a miracle in itself. This year I want to draw special attention … Continue reading
Half Way to 100 Days!
In the world of bone marrow transplants (BMT), everything is measured in terms of how many days have passed since my “new birthday,” the day I received the life-saving stem cells from my anonymous donor who we affectionately call “Mr. … Continue reading
How My Life Was Saved – Nine Times
It’s been 46 days since my bone marrow transplant at Stanford Hospital, a procedure that has saved my life. As I’ve reflected further on my journey to heal from acute myeloid leukemia over the past seven months, it’s become clear … Continue reading
Letting Go of Fear
I show this bald photo of me now as a way of releasing fear. I was so afraid when I was diagnosed with leukemia — Afraid of losing my hair, halting my career, chemo, and especially afraid of dying. Fear … Continue reading
