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I'm blessed with a beautiful life, wonderful family and friends, and had an exciting career. But, in October 2013, I was suddenly stricken and diagnosed with acute myeloid leukemia (AML) following a two week illness not unlike a flu. My life changed immediately.
I was treated by Kaiser Permanente Hospital in San Rafael, California for months where I received multiple rounds of chemotherapy. This treatment did not knock out my AML and my only hope for a cure was to go to Stanford Hospital for a bone marrow transplant (BMT) in March of 2014.
The BMT was very intense and painful but I made it out of Stanford alive. I was doing great and growing stronger until November of 2014 when my blood counts again dropped. I am now being treated for a rare bone marrow condition called serous atrophy, which keeps stem cells from functioning/multiplying properly in my bone marrow. I lost a significant amount of weight and have intense fatigue, must avoid public places (due to infection risk), and as a result spend much of my time lying in bed.
I deeply want to live but desire to have a quality of life that includes dance, community, working for environmental/social causes, being able to enjoy time in nature and spend quality time with my beloved newlywed husband Andy Peri.
I am surviving on blood transfusions and am in a place of yearning to survive. I am also open to letting go of this life with grace should my options fade away. What carries me more than anything else is the dramatic, soul-enriching love of family and friends and my own love and acceptance of change and all that has come to pass.
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Monthly Archives: August 2015
Family, colleagues and friends are invited to attend funeral services for Deb, which will be held at Limantour Beach in West Marin on Friday, August 28 at 10 AM. Please carpool (or ride your bike) and park in the main … Continue reading
Today I lost my beautiful daughter Deb after her long and hard fought battle with acute myeloid leukemia. Deb passed away peacefully this afternoon at home. I will miss her with all my heart, but along with my sadness I feel relief … Continue reading
Deb has asked me to share this with you. Sweet friends – after nearly 2 years of struggling with acute myeloid leukemia cancer, I am going on Home Hospice. This brings me peace, relief, and I feel the love even … Continue reading