This is Deb’s Mom again, Mary Lou, and I am happy to say that Deb is improving a little every day. It’s truly amazing when I think of Deb’s anonymous donor, a 32 year old man from Europe, whose blood-making stem cells have replaced Deb’s and have given her another chance at life. What a generous gift for him to have given! Deb’s blood counts have been steadily rising. Her white cell counts and platelets are now back in the normal range for the first time since she was diagnosed with AML in October, and her hemoglobin is not too far behind. This is remarkable as her transplant was just four weeks ago, and she was still receiving blood transfusions less than two weeks ago.
Deb is slowly regaining some energy, but still has a lot of fatigue and needs to take frequent naps. Just going to her outpatient appointments at the hospital is an exhausting process for her. It takes about four hours, as they draw blood, take her vitals, wait for results, and then come back and discuss her progress with us, adjust medications as needed, and answer our questions. It takes a long time for the body to recover from the intense treatment received prior to the transplant. They say it will take about six months for Deb not to feel so tired all the time, and a year or more to recover to the point where she can resume most of her usual activities. Deb, of course, hopes it will be faster than that! We are taking short walks daily as gentle exercise is an important part of regaining strength. Below is a link which discusses recovery in days 30 to 100.
Thanks to all of you for your love and support to Deb and to me too, as her caregiver. It helps a lot knowing so many people are taking this journey with us.